Success for baby Kane at Magnus Church of England Academy car boot-style fundraiser as he spends first week out of hospital

A baby with a rare form of epilepsy has spent his first week out of hospital and was able to attend his own fundraiser.

Kane Tinegate, five months, who has migrating partial seizures of infancy and can have many seizures a day, was the centre of attention on Sunday as more than 200 people attended his fundraiser at the Magnus Church of England Academy, Newark.

The event, organised by Matthew Ash, was to help support Kane’s family as they cope with his illness.

“Newark should be very proud of itself,” said Matthew.

“Even when it is a child that people do not know, Newark people will still spend money to help these families get through some really tough times.”

There were 15 stalls in the sports hall, a bouncy castle, and a nappy and wipe donation drop-off.

More than £600 was raised on the day and one stall managed to raise more than £120 alone.

Mum of Kane, Shannon Tinegate, described her son as a little warrior and said she was grateful the fundraiser was a great turn out.

“It was so lovely to see the whole community come together in aid of Kane and spreading awareness of his illness,” said Shannon.

“Next year, we want to help The Daisy Garland charity, which provided us with a SATS monitor.

“Kane has spent his first week at home now, officially discharged.

“He is as settled as he can be for now, and his seizures are very subtle and brief compared to how they were, although he is still having a high amount daily.

“We have an MRI next month to check how he is getting on.”

To donate to Kane’s appeal, go to https://bit.ly/2MW47wH

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