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Fernwood mum creates CdLS awareness video despire impact of coronavirus




Last year the town turned purple to help raise awareness of CdLS and, despite the impact of coronavirus, mum Samantha Timmermans still managed to help create a special awareness video for the little-known condition this year.

Saturday was International CdLS Awareness Day, which aims to highlight the extremely rare genetic condition that only occurs in one in 40,000 people.

Miley Timmermans (34594762)
Miley Timmermans (34594762)

Fernwood mum Samantha, along with her two boys, Jayden and Bobby, took part in a video challenge for her seven-year-old daughter, Miley, who has the condition.

The condition causes a range of health problems. Many with it are small at birth and remain small compared to children of the same age, and sometimes suffer from hearing and vision problems.

Last year, several places in Newark and Balderton were lit purple to help spread awareness, however, the coronavirus made that much more difficult this time round.

“This year was slight different and it has been harder to spread awareness, so that’s why we created the video,” said Samantha.

“We got permission to use the music and put the video together. It shows even in these times people are coming together and doing everything they can to support each other, which is great.

“A lot of the children are classed as vulnerable and need to be isolated, so it was safe for them as well.”

She said the yearly campaigns have proved to help people in the community as more often than not people were unaware of the condition.

“When it was first mentioned to us we went away having to Google it to find out more information, but the day helps spread awareness and that’s the aim of it,” Samantha said.

“We have helped other people in the community get diagnosed because of what we do on the day.

“It is nice that it brings everyone together without being physically together.”

To watch the video visit here.

Miley and her brothers featured in the third clip of the video.



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