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Trent swimming challenge by Bob Macrae-Clifton and Wesley Smith to get a new buggy for Harley

A River Trent swimming challenge was completed by two men on Sunday to raise money to buy a new buggy for a teenager with a rare disease.

Harley Smith, 13, of Farndon has nicolaides-baraitser syndrome (NCBRS) a very rare condition with only 75 cases reported worldwide.

He has outgrown his current buggy and is in need of a more sophisticated three-wheel version.

Wesley Smith, 25, and Robert Macrae-Clifton, 57, with Harley Smith, 13. (4092216)
Wesley Smith, 25, and Robert Macrae-Clifton, 57, with Harley Smith, 13. (4092216)

Family member Mr Bob Macrae-Clifton of Newark has launched a fundraising campaign to buy the buggy with anything over going to the Newark Orchard School.

Bob, 57, came up with the idea of a two and half mile swim in the Trent to help raise money. The challenge was also taken up by Harley's brother Wesley Smith, 25. Both are strong swimmers.

They wore wet suits donated by Martin Shepherd but Bob said it had still felt very cold when they first entered the water.

They started the two and half mile swim near the Lord Ted on Farndon Road. They got out before they reached Newark Lock and then re-entered the water from a landing platform.They finished near the millennium bridge.

"It was a once in a life-time thing to do," said Bob. "A memory in the making."

Family and friends walked along a tow path as they swam and they were there at the end to celebrate with them.

"It was great how many people came along to support us," said Bob.

The next main fundraising event will be in November when there will be a music festival at the RAFA Club in Newark.

Donations can be made at an online crowdfunding page which can be found at https://www.crowdfunder.co.uk/harleys-buggy

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